We were touched by the stories of children dealing with long Covid, and our thoughts are with all those affected by this condition. While doctors are still debating the causes of long Covid, there is ongoing concern regarding the validity of the “microclots” hypothesis. Research has shown that these particles are present in normal individuals and other conditions, casting doubt on whether they are the true cause of long Covid. In reality, these particles are not clots but small particles of a protein called amyloid, which do not play a role in blood clotting.
Upon reviewing current published work, it has been concluded that there is insufficient evidence to support the effectiveness of treatment with blood-thinning drugs, also known as anticoagulants. These medications can have serious side effects, raising ethical concerns if used outside of well-conducted scientific trials. It is important for individuals with long Covid to have a balanced understanding of the scientific evidence available to them. Further research is needed to fully comprehend the causes of long Covid, and a comprehensive approach to studying the condition is welcomed.
In a personal account similar to Toby’s case, Emily McCarthy shares how her 12-year-old son has been battling long Covid since 2021. By making significant changes to his diet and identifying his “safe foods”, he has experienced a considerable improvement in his health. Adhering strictly to his dietary restrictions has helped manage his fatigue, allowing him to attend school and engage in physical activities, which seemed unimaginable a year ago.
Another parent, Penny Joelson, recounts her son’s struggles with long Covid after falling ill at the age of 11. Despite experiencing debilitating symptoms such as memory issues and fatigue, he was left without proper educational support due to his inability to attend school in person. The lack of provisions for remote learning poses challenges for students like him, highlighting the need for more comprehensive support systems.
On a more positive note, Jane Cox shares her son’s journey with chronic fatigue following a severe illness at the age of 10. Despite the lack of support back in 2012, her son’s determination and resilience have led him to thrive and pursue a degree in mechanical engineering at the age of 21. His story serves as a testament to the importance of time and perseverance in overcoming challenges associated with long-term health conditions.
These personal accounts shed light on the varied experiences of individuals and families affected by long Covid, underscoring the need for continued research, support, and understanding of this complex condition. The stories of resilience and hope offer inspiration to those grappling with similar challenges, emphasizing the importance of perseverance and a holistic approach to managing long-term health issues.
